Resources

Support_for_Pelvic_Pain

Endo Warriors

A face-to-face and online support organization founded by Jill Fuersich, Jordan Davidson, and Nicole Malachi; who were all diagnosed via laparoscopic surgery in 2007, 2004, and 2007, respectively. After failing to find a support group in the New York area, Jill, Nicole, and Jordan combined forces to create a safe haven for women to tell their stories, vent, and receive support from other women going through similar circumstances. Since forming in 2012, Endo Warriors has launched support groups in New York, New Jersey, and Colorado. Have a question for them? Send them an email.

The Endometriosis Association

An international non-profit organization with members worldwide, focuses on three equally important areas of emphasis: First, we provide support to girls and women suffering from endometriosis—a chronic, painful hormonal and immunological disease—and because families are often impacted by the debilitating effects the disease has on their loved ones, we extend our support services to them as well. Second, we implement education programs and produce informative materials for those affected by the disease, for the public and for medical professionals. Third, we conduct and promote research in collaboration with leading medical researchers worldwide in order to find better treatments and ultimately a cure for this life-altering, potentially disabling disease.

    The Endometriosis Research Center

    The ERC strives to make a positive impact on behalf of all shareholders in the disease, to ensure that society recognizes the far-reaching impact the illness continues to have on patients of all ages – not just those trying to conceive. Everyone has a voice in our organization. Since our inception, we have tirelessly addressed myths, misinformation and lack of understanding about this illness on a global basis.  There is never a fee to join, participate in or benefit from the ERC’s programs. A free, truly non-profit foundation in every sense of the word, we exist solely on donations and there are no staff salaries. Moreover, we have no industry or sponsorship ties.

      The Pelvic Guru

      Bringing you the best and most relevant pelvic health research through blog posts, videos, and courses. Tracy Sher, Founder, is on a mission to present you with rock solid pelvic health information from numerous experts, including physicians, fitness experts, researchers, clinicians, physical therapists, sex therapists, and sex educators with a wide array of degrees and backgrounds—all with the evidence to back up what they teach.

        Vital Health Institute

        Vital Health Institute has published one of the most comprehensive, enjoyable and may we say, extremely easy to read informational booklets on Endometriosis and pelvic pain. When we first glanced upon the Endo Survival Guide attending the Endo What movie in San Francisco, we were blown away at the amount of time, energy, thought and compassion devoted to this guide. It is chock full of information and detailed pictures to help understand the complexities of endometriosis and pelvic pain that can easily be understood.The Endo Patient's Survival Guide, co-authored by Dr. Andrew Cook, Lippy Hopton, and Danielle Cook, is the essential patient's companion to living with and overcoming endometriosis and pelvic pain: from seeking help and getting an initial diagnosis to navigating treatment options and achieving optimal relief and wellness. The guide is now printed and available on order through Amazon.com.

          The Pelvic Messenger

          Supported by the International Pelvic Pain Society and Beyond Basics Physical Therapy, is devoted to promoting diagnoses, recovery, and success in treating Chronic Pelvic Pain (CPP) conditions in men, women, and children. Furthermore, they are dedicated to improving patient and healthcare providers education on CPP. The founder, Elisabeth Oas, along with the managers, Amy Stein, DPT and Alexandra Milspaw, Ph.D. want to accomplish this mission by discussing up-to-date topics and research on pelvic pain. The show is a message of hope and healing.

            Interstitial Cystitis Network

            Can you imagine how great it would feel to walk into a room filled with others who understand exactly what you’re going through?? Having IC is difficult at times… and doing it alone is unnecessary. Why recreate the wheel and try to figure this out on your own when there are dozens of independent IC support groups around the country who are waiting to help you! They will help you learn more about IC, about resources in your area and, most of all, to make some great new friends! Don’t suffer in silence at home, alone. If there is a group near you, call the group leader and introduce yourself! Read the Founder/CEO, Jill Osborne, personal story.

              HysterSisters

              A "social advocacy" health education website dedicated to medical and emotional issues surrounding the hysterectomy experience and gynecologic-related conditions and illnesses, supporting women from diagnosis to treatment, to recovery. Since 1998, HysterSisters has provided personalized support, dispersed educational materials, and conducted research--all at no cost to the women who visit our website.