Founder, Kristen Mcrobie of Endometriosis and Me, is dedicating to provide support, spread awareness and advocate for women who may not have the means or the voice. Join her 90,000 followers on Facebook on the right for a cure.
WHAT WE DO: The ERC strives to make a positive impact on behalf of all shareholders in the disease, to ensure that society recognizes the far-reaching impact the illness continues to have on patients of all ages – not just those trying to conceive. Everyone has a voice in our organization. Since our inception, we have tirelessly addressed myths, misinformation and lack of understanding about this illness on a global basis. There is never a fee to join, participate in or benefit from the ERC’s programs. A free, truly non-profit foundation in every sense of the word, we exist solely on donations and there are no staff salaries. Moreover, we have no industry or sponsorship ties.
Imagine this: a world where people with chronic health conditions get together and share their experiences living with the disease. Where newly diagnosed patients can improve their outcomes by connecting with and learning from others who've gone before them. Where researchers learn more about what's working, what's not, and where the gaps are so that they can develop new and better treatments.
It's already happening at PatientsLikeMe. We're a free website where people can share their health data to track their progress, help others, and change medicine for good.
The Endometriosis Association, an international nonprofit organization with members worldwide, focuses on three equally important areas of emphasis: First, we provide support to girls and women suffering from endometriosis—a chronic, painful hormonal and immunological disease—and because families are often impacted by the debilitating effects the disease has on their loved ones, we extend our support services to them as well. Second, we implement education programs and produce informative materials for those affected by the disease, for the public and for medical professionals. Third, we conduct and promote research in collaboration with leading medical researchers worldwide in order to find better treatments and ultimately a cure for this life-altering, potentially disabling disease. We can be found on the internet at www.EndometriosisAssn.org.